This is getting absolutely ridiculous! Got a call this morning that DD was at the nurse with a headache again. DH got to the phone before me and told her that she needed to give ibuprofen then send her back to class. Nurse said since DD only said headache she would give ibuprofen but would not give it if she said her stomach hurt too.
Just got another call - this time from district's chief nurse (who is spending time in DD's school since nurse is new and before that we had "floaters".) She was upset because I had let the teacher know about starting the Elavil instead of communicating medical information directly to the nurse. I explained that we have been having a terrible time communicating with the new nurse, who is insisting on giving DD Tylenol instead of the ibuprofen which helps more, and have found it easier to communicate with the teacher and allow her to advocate for DD. Head nurse agrees with other nurse and would not be willing to administer ibuprofen either.
This is twice this week that I have lost it with the school and both times the dang nurses have been the cause. I told her that I spoke with neurologist and they are sending a letter clarifying the order. Well, then we are going to have to get a totally new set of orders since the current order is from local pediatrician. So does this mean DD won't get anything for her headache because I arranged for a letter from the specialist to supposedly clarify things? Well now that is going to depend on what the letter says.
This is when I kind of lost it a bit... I said ALL of this was discussed in the meeting last week. The original order for Tylenol was replaced with an order for ibuprofen when we found out in the hospital that it was more effective. Temp/floater nurse and I discussed and agreed that we would leave the Tylenol there in case it was needed but AT THE MEETING agreed that if I needed to medicate DD before school it would be with Tylenol since they would be administering only ibuprofen in school. Apparently none of this matters! Apparently I - who have no medical background whatsoever - am somehow responsible for knowing that when they changed nurses none of the previous conversations I had would have any meaning. Jeeeeeshhhhh! We had even talked about whether or not DD could have abdominal migraines, but now the stomach pain is telling these nurses she doesn't actually have migraines at all...
So apparently if I had not left the Tylenol they would have either not treated DD for her headaches or just gone ahead and used the ibuprofen but I couldn't really tell which one it is. Now she won't get anything until the school nurse talks to our pediatrician. So why the heck am I getting the letter from the neurologist? Am I just losing my mind here or does this make sense to some of you with more experience than me?
I left a message for a highly recommended advocate. I think the time has definitely come. Hopefully he will be able to help navigate this mess as well as clarify things with the neuropsych eval.
Sorry for the rant... I am just sooooo frustrated!
