We have gone a different way with this. We have outside people we really trust to be discreet and represent our interests. We have given the school access to them. They go to the school, train teachers to deal with DS, and have made a huge difference in making school a better place for DS. They are listened to by school personnel where we are not (even when we say the same things). They take data and have figured out how to solve problems where their expertise has been really valuable.
It really depends how much you trust your outside people. I would not want private therapeutic information revealed. But if it is a matter of teaching the school what to do, it can be very good to have the whole team working together.
DeeDee
