I sympathize. Both of my children went through crazy diagnostic runarounds for different (physical) mystery issues which turned out to be ultimately never produce satisfying answers. This makes me sound slightly nuts
Nope, it makes you sound fairly typical, in my experience. Especially if there were neuro issues involved. Eldest DS was not difficult to dx, hallelujah, bc he performed nicely for each EEG.
But treatment was another issue and our only local pedi neuro is a buffoon. Thankfully, we were able to go to nearest big city children's hospital and that ended up helping a lot--enormously inconvenient, but at the time I was SAHM so was do-able.
I keep telling myself "nobody is dying." Maybe I should rework that self-talk to "we are dong all we can, in the moment."
