I had a really good experience going to a geneticist. In reading on the EDNF message board, it seems like people can have trouble with other specialties like a rheumatologist or general practice doctor.

Where some specialist are very good at disorders involving their system of expertise, I think the understanding of how various genetic disorders manifest across the body help geneticists figure out what is going on.

For example I had no idea so many of my peculiarities were related. Things like preterm deliveries, hypotension, missing molars, hypermobility and various other things were related to EDS.