Blackcat my hypermobility is "not that bad" either, certainly nothin like the photos on the Internet. But I have had life long issues, many of which could ave been better handled, and made some major life choices that maybe should have been different with full health information in mind. No-one thinks of connective tissues, t gets dismissed out of hand most of the time when you ask, but you really need to know, from someone that actually gets connective tissue disorders, if your son has one at play.

And keep in mind that the most common form of EDS does not actually have an identified gene yet, so is diagnosed clinically not on gene test.