bronxmom- my son was diagnosed by a pediatric neurologist. He worked with another specialized ped neurologist. His tests were very thorough, since my son had had a gran mal seizure, and they were looking for a pattern for the onset from past ones.

I don't know if it helps, but at the time, pediatric neurologists were the only ones who could diagnose PANDAS. Maybe if you go to one, they would be more knowledgeable and help more. They also might be available. We have to now go only every six months for follow ups.

BTW, did you know there is a vaccine they are working on for strep throat? The last I heard it was being tried on a specific sample population. It will keep these guys from prophylactic doses of antibiotics. We hold out hope then that it will be overcome someday.