I think I'm also being somewhat triggered by this whole situation--bc it is terribly reminiscent of what happened with my older DS, with a constellation of neurological issues, including a pretty devastating seizure disorder, which proved hard to treat.
I sympathize. Both of my children went through crazy diagnostic runarounds for different (physical) mystery issues which turned out to be ultimately never produce satisfying answers. This makes me sound slightly nuts, but in one case the symptoms were very obvious and distressing (leading other parents to ask about them, even) and in the other, professionals red-flagged him repeatedly even though we weren't very concerned. Both my husband and I were so frustrated by the time, money, and emotional energy that went into chasing these demons (in one case, there was also a lot of medication)...now we are kind of wary and burned out on the diagnosis dance. DH especially.
