Originally Posted by blackcat
Irena, are they looking for more kids for their study or is it just kids in a certain geographic area?
DS has already had 2 MRIs and all that shows up is a possible Chiari I malformation.

Have you had a chance to learn much about Chiari? I have close friends where the mom and two daughters both have Chiari. I know how hard it can be to get a proper diagnosis (also something rare that many people, including doctors, don't understand), to find information, and treatment options. Let me know if you want me to pass along any information.

Thanks for the link, too!