Thanks so much for your responses and questions. I noticed in your responses that you didn't say you knew another who had the same combination -- as though either it's really unique or incorrect. Is that a correct summation on my part?

To answer the questions posed about his physical writing abilities: When I asked him whether the act of writing is difficult he said, "No, the thinking of what I need to write does. It just takes time to think." The answers don't come swiftly. Once they do, they're correct. He admits to being highly distracted by everything around him, and even other thoughts. Is that what a typical person with ADD has to deal with?

He's sensory sensitive. Sound, taste, touch, sight. While at noisy sporting events when he was young, he would become anxious to tears. He has learned to cope now, most of the time. At age 8 he asked me why I had put cinnamon in a 10 qt. pot of chili (new recipe I was trying out which called for 12 different spices). The recipe only called for 1/8th teaspoon. Shirt tags bother him, but only a little--touch is his least sensative. As for visual, on the Berry Non-Motor skills test of 38 questions, he got all 38 correct. The test administrator said she'd never had a person get all of the answers right in her 12 years of administering that test. That meant he observed everything and could keep it in his memory and recall it. Could this have anything to do with his speed?

His fine motor skills have been average throughout his life. However, Legos, blocks, models to put together, and the like were highly frustrating for him. Most who worked with him and knew he was bright expected him to appreciate these things. They were common gifts. It was just the opposite. He never got into coloring books and crayons either. He would enjoyment in taking things apart instead, VCRs, hard drives, anything.

In contrast, his gross motor abilities have been exceptional, learning to ride a bike at age 3 1/2, for example--and that was when he had his first opportunity and he rode well on his first try. Most gross skills he masters upon the first attempt.

As for medication. You have to know my husband and his father is a licensed mental health clinician. So my son tried Ridalin (it may have been another form of the same drug), and then Concerta. Our son reacted horribly to it's effects. Cried a lot, became violent and aggressive. Mood swings. We haven't tried anything else. He's not depressed. And he's rather resilient. And yes, he's always struggled in school. Problems arose in the 1st grade when his teacher kept him after school for 2.5 hours beside her desk to complete a project she was sure he could finish and was choosing not to. She was his worst. It was his compassionate 2nd grade teacher that first recommended he be tested. We could set our Fall and Spring calendars to expected calls from his teacher, no matter the grade. For 4 years I thought he was Oppositional Defiant because his delay in processing doesn't start and end in the classroom, it's universal.

This is the most important question I'm hoping to get answered at this point, because Lorel is right, time is of the essence now. He's been tested quite a bit, albeit not by 2E specialists. But my question is this: So what would it mean? Tangibly? what will finding the right diagnoses or label do for him? Nothing as far as I can tell. Even if we obtain further test results from qualified 2E specialists, it won't change his education options. How do I educate him?