This rings true for me too... I have son who is so similar to Lori H's... very intelligent but has hypotonia (as well as vision issues). He uses words like "nefariously" but can't write his name legibly. I was told today by DS' teacher that I "need to relax," which I get why she said that (I spend an awful lot of time tryign to help, advocate and try to figure out the best way to help my son) and maybe there is some truth to that but ... how can I relax? when I do relax my kid gets mislabled, misdiagnosed and misundertood ... he get anxious and depressed because he is so complicated and trapped. I am taking my guy to CHOP neuromuscular clinic in a few weeks in attempt to also see of we can find out they what and/or why behind his hypotonia and vision disorder (both of which are neuromuscular). My mom, and I think perhaps sme others, seem to think I just need to relax - to "stop looking for problems." Really, how can I do that? Anyway... sorry that I rambled I just can relate!
Last edited by marytheres; 11/21/12 01:18 PM.
