Thank you all! We got the accommodations! Not exactly as specific as I had written but very close... Instead of putting down a specific number of words (I had scribe provided "for more than two sentences") they put provide a scribe when writing "multiple sentences." I am okay with that as I figure "multiple" means at least over three so I think that is okay. Also, they left the my math fluency specifics - i.e., he's to do it orally!

Now that I think he will be properly accommodated in school, I am on to getting him looked at at the CHOP neuromuscular clinic. He has hypontonia, which, while mild, isn't going away and strabismus - both are neuromuscular conditions. Why? I think we need to find out. He also grinds his teeth a lot in his sleep (haven't noticed it much while he awake). I also have noticed he does tend to lose skills. Examples: he learned to ride a bike w/out training wheels in the fall that he turned 4, a bit over six months later - by around age 4 3/4 (that summer after not riding the bike all winter) he forgot how. He did master it again at 5 years old but I thought that odd (but maybe just the hypotonia). He hasn't lost it since thank God. Then, same with swimming... last summer (before the one just past) he was swimming, this past summer he had completely forgotten how. By the end of this past summer he still never got back up to where he was the summer before. Again - hypotonia? Vision? or something else? Also, reading - he learned to read at the end of preschool and forgot it all over the summer entering kindy. He seems to backslide a lot with reading (which really really upsets me and makes me look at times like I exaggerate his level, I feel like). Again, could be just the strabismus but maybe not. He's been doing great and has been getting VT since June and I thought he was soaring. AND, then, just this past week I feel like I noticed a regression with the reading! Competely freaks me out. Yet his intelligence seems always increasing and very high (high vocab and seems to NEVER forget words and their meaning, doesn't forget his math, or other things he learns like science stuff and such. (As you may remember is IQ is quite high). But the certain "skills" he seems to lose.. he DOES regain them seemingly permanently but the lose and regression worry me - does that happen normally?

Anyway... so worried and just rambling..

Last edited by marytheres; 10/09/12 05:04 PM.