Originally Posted by deacongirl
Originally Posted by HowlerKarma
Our lives are, in fact, far LESS normal than life with a type I diabetic was, and less normative in some ways than that enjoyed by close friends with a trisomy daughter. They have freedoms that we can only wistfully dream about... but we have freedoms that they do not, too.

Hey HK--quick aside, I don't know about other disabilities, but people first language is very important to the self-advocates that I know, so they would strongly encourage "daughter with Trisomy xx". Thanks!

Excellent point. smile Most of the time, to us, she's just {Childname} and her trisomy isn't even part of how we identify her. Among the parents, of course, we sometimes share our frustrations, but those are almost invariably about advocacy challenges, not frustration with our kids' disabilities, per se.


Schrödinger's cat walks into a bar. And doesn't.