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Re: Marfans and connective tissue disorders Lori H. #168415 09/19/13 08:07 PM
Joined: Feb 2012 Posts: 756 K KJP Member
KJP Member K Joined: Feb 2012 Posts: 756	I got more information today from the genetic counselor. It sounds like he either has EDS and maybe cleidocranial dysostosis (a skeletal abnormality) or just EDS. The ruling out of cleidocranial dysostosis is looking good.

Entire Thread
Subject	Posted By	Posted
Marfans and connective tissue disorders	Lori H.	06/07/13 08:50 PM
Re: Marfans and connective tissue disorders	MumOfThree	06/08/13 05:02 AM
Re: Marfans and connective tissue disorders	JonLaw	06/08/13 01:54 PM
Re: Marfans and connective tissue disorders	jack'smom	06/08/13 01:54 PM
Re: Marfans and connective tissue disorders	JonLaw	06/08/13 03:28 PM
Re: Marfans and connective tissue disorders	Lori H.	06/08/13 04:28 PM
Re: Marfans and connective tissue disorders	MumOfThree	06/08/13 04:50 PM
Re: Marfans and connective tissue disorders	Quantum2003	06/10/13 04:12 PM
Re: Marfans and connective tissue disorders	Lori H.	06/10/13 07:13 PM
Re: Marfans and connective tissue disorders	La Texican	06/10/13 07:24 PM
Re: Marfans and connective tissue disorders	Pemberley	06/11/13 08:06 AM
Re: Marfans and connective tissue disorders	Lori H.	06/12/13 03:49 PM
Re: Marfans and connective tissue disorders	HowlerKarma	09/18/13 09:58 PM
Re: Marfans and connective tissue disorders	HowlerKarma	09/18/13 10:05 PM
Re: Marfans and connective tissue disorders	MumOfThree	09/18/13 10:07 PM
Re: Marfans and connective tissue disorders	HowlerKarma	09/18/13 10:20 PM
Re: Marfans and connective tissue disorders	MumOfThree	09/18/13 10:38 PM
Re: Marfans and connective tissue disorders	Irena	09/19/13 01:14 AM
Re: Marfans and connective tissue disorders	HowlerKarma	09/19/13 01:48 AM
Re: Marfans and connective tissue disorders	Irena	09/19/13 02:10 AM
Re: Marfans and connective tissue disorders	KJP	09/19/13 01:51 AM
Re: Marfans and connective tissue disorders	HappilyMom	09/19/13 02:07 AM
Re: Marfans and connective tissue disorders	MumOfThree	09/19/13 02:33 AM
Re: Marfans and connective tissue disorders	HappilyMom	09/19/13 02:30 PM
Re: Marfans and connective tissue disorders	KJP	09/20/13 03:07 AM
Re: Marfans and connective tissue disorders	MumOfThree	09/20/13 03:56 AM

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