Her file has it listed as Dietary Fructose intolerance, I assume fructose malabsorption.

Which comes to a question that I have struggled with all day; the referral list HFI as the reason for the referral. I am constantly correcting medical staff as to which one she has, which I think is ridiculous as they should have the report from the gastroenterologist.

I want to correct it but at the same I feel like I'm finally getting somewhere to getting her some help. I'm getting so tired of hearing that she tests low average so she must be fine. I've been looking for help since she was two years old and stopped looking at me.

Is correcting this likely to cause them to retract the referral?

Is correcting this (again) going to cause me problems?

ETA: I've had an email open to her pediatrician for 30 minutes now and am in tears. I'm so afraid that is will retract the referral and yet another door will be closed to us. I've been trying to get her help for nearly 5 years now and every time we're turned away because she'll test "average". She struggles with so much and knows she does, it's hard for me to watch. I just want help, always have, but no one seems to be around to give it.

Last edited by AtSouthDam; 02/01/13 07:54 PM.