AtSouthDam - I am in Australia, I have no idea how your health system works so I can't help you there. I am so sorry. But Dietry Fructose Intolerance is Malabsorbtion yes. Really there should be no confusion, HFI is far rarer and more serious, if she had HFI you would surely have known that with absolute certainty yourself.

But my understanding is that even malabsorbtion can be severe and cause huge problems. For us dietry intervention has had a profound impact on our DDs functioning. I wish I could help you. I understand trying and trying to get help for an odd child and not being able to find it.