Our family learned yesterday that the painful scoliosis bracing, isolation, and lack of sleep that my 14-year-old son has gone through for the last three years of his life was not enough to stop the progression. Now we are looking at a very difficult surgery, five days in the hospital, and months of recovery. My son does not want to go through the surgery. We both have white coat syndrome and our blood pressure goes up when we see or think about seeing a doctor. He has to go through additional testing to see if his hypotonia is caused by something that might cause complications. This adds to the stress.

Although we homeschool, anxiety about medical issues makes it difficult to learn.