My younger dd has absence seizures. Up until this year, the diagnosis (even though it is in her record and she is medicated for them)was unaccepted at school. We were literally begged to have her medicated for ADHD, which she does not have! This school year, she has had a 24 hr eeg that she was even brave enough to wear at school. We are also scheduled to have the 24 hour video eeg. She has been through so much with all of this, but she is a trooper!
At my insistance, the school finally located an ipad for dd and is using several programs with great success. One of the teachers told me that she was glad that I fought so hard for it because it has really allowed dd to show what she can do when her dyslexia/dysgraphia roadblocks are minimized.
Do lots of reseach and know what is available to help your child. If possible see if you can try a few things at home and then you know how your dd reacts to it. For instance, if you have windows7, there is a free speech to text program. Have her try it and/or a voice recorder and have her dictate stories. If she finds an alternative strategy that she likes that allows her to minimize her frustration that is key.
Also, I know this is hard, but you have to try and minimize your level of frustration around your dd when it comes to her issues. I know that with my dd, she seems to take on the weight of all of it if I am not careful...she blames herself for my being upset about the school, she blames herself for the school being frustrated with her learning style...that is a lot of pressure on a little girl.
Good luck!
