I don't really have any answers, but I wanted to say hello because I am also in MA and in a similar situation. My son is 7 and I have debated and debated on what to do with him. I believe he is 2e. Finally I got my husband to agree and we are getting him tested next week! It is a huge undertaking, and it is expensive, but I am so relieved that we might have answers and "proof", and to be able to understand him is worth it's weight in gold! We are going to a neuropsychologist in RI...probably the one you were reading about, but she is going to stop taking patients at the end of this month (we've been on a wait list forever). I have the name of someone else recommended to me, if you're interested message me. Hang in there...
