Pemberly is it worth contacting the Eides in writing with a brief summary (previous test scores perhaps) and ask if they would put you on their list. The fact that you KNOW you have a highly complex issue for which there are few other good options might make them inclined to help or at least point you in the right direction elsewhere. I once had the opportunity to speak to Tony Attwood (girls and aspergers expert) for just 2 mins about our DD and he very kindly pointed us at the right person to finally make some sense of everything.
Also, I would totally contact Amy Yermish.
