Ehlers-Danlos syndrome

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Ehlers-Danlos syndrome #244822 02/14/19 06:41 PM
Joined: Feb 2012 Posts: 1,390 Seattle area E ElizabethN OP Member
OP ElizabethN Member E Joined: Feb 2012 Posts: 1,390 Seattle area	My niece was just diagnosed with this today. Do I remember correctly that there are others on here whose kids have it? I have hypermobile joints, and my kids have some other related symptoms (especially digestive). Just wondering where to go next (if anywhere).

Re: Ehlers-Danlos syndrome ElizabethN #244823 02/14/19 10:39 PM
Joined: Feb 2012 Posts: 756 K KJP Member
KJP Member K Joined: Feb 2012 Posts: 756	You are in the Seattle area, yes? I was diagnosed at the UW genetic medicine clinic. I would recommend going there. My kids went to Mary Bridge in Tacoma. They were great too.

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