Thank you for the suggestions. I am still trying to get the PCP to write a referral for the physical therapy assessment. Her assistant said we needed a statement from the neuropsychologist that we had to wait over four months to see but she is apparently too busy. We are supposed to wait 30 days to get the report and then take it to the PCP. Our insurance is through the military and it is all we could afford. We have had to jump through a lot of hoops to get anything. It is very frustrating. When I get the neuropsychologist's report I will ask the PCP about a referral for a chiropractor and a different developmental optometrist. The optometrist my son saw only tested him for about 15 minutes and I think he needs more thorough testing.
I was really surprised and disappointed that the neuropsychologist couldn't give us any more information than she did on dyspraxia. Maybe it is because there hasn't been as much research done on it.
I do think my son's vestibular issues improved after the six sessions of OT that he got before our insurance stopped paying for it. Insurance wouldn't pay because the school should pay for it but the school wouldn't because my son is homeschooled and it doesn't matter that the principal and teachers at the school told us to homeschool.
My son used to fall every time he had to do a dance move that required spinning around. The OT recommended a lot of spinning so we used a tire swing at home. He doesn't fall any more, but learning those dance routines for musical theater will probably always be more of a problem for him than other kids because of the dyspraxia. I think he will go back to musical theater even with the dancing requirement because the other kids really like him and miss him. He took a break and didn't do the last show because of the doctor appointments and other things that were going on in his life. One of their performances was scheduled on the same day my son's piano recital is scheduled and I didn't want him to miss that. He has worked really hard on a very challenging song that he found on the internet and wanted to learn to play. People who hear him play will most likely not realize that he has dyspraxia and will think he can't possibly have it when they see hear him play. They won't know how much effort went into being able to play that song.
The special ed director at the school who would never call us back to set up an IEP meeting when we asked for it years ago still avoids my husband and me, but yesterday my son and I stood in line behind him at a concession stand. His son who is a few years older and in Boy Scouts asked my son if he was going to stay in scouts. My son said no, that he thought it was boring and he was tired of it and he was tired of people trying to make him do something he had no interest in. I said we were still trying to work out the camping and hiking issues and I would really like for him to stay in it, but my son said there was no way he was going back. I know the boy's dad, the special ed director, heard me when I told my son I wanted him to do something with other kids because he is still a kid. Having dyspraxia has made it much more difficult to find activities for him to do with other kids in our small town and the school wouldn't even allow him to play on the playground during school hours and see the friends he made in kindergarten. Scouts was the only thing he was in where he saw kids from the public school.
My son's proprioceptive issues are still very much there and I need to find ways to work on those.
