Originally Posted by Chicagomom
Originally Posted by Priiak
[quote=blackcat]

My point stands: if a diagnosis is made with an appropriate assessment (autism specific interview, ADOS-2 with a research reliable examiner, additional cognitive/language/etc testing, additional reports from school/outside sources other than the parent, etc), the likelihood of that diagnosis changing is slim. Of course, there are always outliers, but they're just that: outliers.

I agree that kids are not diagnosed properly these days, but I don't agree that ADOS can provide diagnostic stability. ADOS consists of different parts and they all sum up to make up a total score. Some of them, like communication can improve dramatically in kids over the years, changing the diagnostic outcome.

My son isn't an outlier. He had three ADOS tests, different modules, same administrator. Two years apart, starting at 2.5yo. He easily qualified for PDD-NOS five years ago, under DSM-IV, based on ADOS, because his language delay and communication part was very high. As his language improved, his ADOS scores and his diagnosability went down, with basically only socialization issues remaining, not being sufficient for a dx on its own (it might have been enough for SCD but not AS). His ADOS was borderline at 4.5 and was below threshold at 6.5.

Not surprisingly, kids whose presentation is consistent with former PDD-NOS (language delay must be present), that are diagnosed before 36 months can "beat" ASD by the age of 8-10, when their verbal issues become undetectable and their social skills improve as a result of communication improvement.


Again, PDD-NOS was discarded in the DSM-5 due to a number of factors, and thus can't be factored in when looking at current autism rates and the ability to "beat ASD." If you "beat" ASD, you never had it. That's not how ASD works.
We're going to have to agree to disagree on the ADOS-2. I'm a research reliable examiner of it and use it daily. I worked with one of its authors. Studies, along with my own personal experience, show that that measure and the ADI are the most solid measures of ASD out there. They have fantastic reliability and validity, consistently across repeated studies (including longitudinal). Of course, they should NEVER be used on their own to make a diagnosis and any decent clinician knows this. As for your comment about the ADOS-2 and language, each module accounts for language disabilities. ASD language difficulties are quite different than standard language disorders and the ADOS-2 and clinicians know this very well.
I'm glad your son was an outlier, but he's just that: an outlier, and can't be compared to the whole of the autism population.
But, I'll repeat: any parent who has a concern for autism should not accept a diagnosis without either the ADI or the ADOS-2. Full stop.