Thanks Pemberley, that is very interesting. DS is always gasping for air in the middle of sentences. Breath patterns obviously abnormal.
Right now they need to update his IEP and I told her to keep in speech/language at 1X per week, doing the social skills group and putting a "hold" on the prosody issue until I can get him independently assessed. I'm hoping that we can get an out of network referral but I have to prove that we tried before to get services from the in-network people and it didn't work. Two years ago I had taken him to the hospital clinic, which is in-network, and the SLP completely blew me off and told me he doesn't need services, but wrote things in her report like he doens't know where to put the inflection in words, he can't move his tongue back and forth in his mouth, he is speaking in a monotone, etc. She said "no services recommended" and "Keep working with school SLP" (at that time it was a different one). What?
So now I'm supposed to go back to that place and try to get a report for the school of what they should be doing w/ him? I don't think so. Luckily the primary care doctor seems to be taking an interest in this and I hope he will help us figure this out. I have another appt. with him this week so we can go through all of this school stuff in more detail. I think I am going to have to take him somewhere for a full eval, but I don't want to request an IEE because the school will want to do their own eval first, and they will mess it up. The eval will come out justifying their pre-determined conclusions. Been there, done that (with DD).
He is due for a 3 year eval in the fall but they wanted to do it now. I told them I want to wait til the fall. I had a horrible thought last night that they want to do it now because they want to drop the IEP altogether. The reason that the OT gave me for dropping services was because it's a "related service" and he has already shown that he can write letters (never mind the horribly illegible classroom work samples). Again...it just leaves me scratching my head.
