kathleen'smum: Great news about the dyslexia diagnosis. A correct diagnosis helps quite a bit because now you can get help directed towards the problem. I finally got my DS15 tested and it helped getting the school to stop saying, he's lazy, he just needs better study habits, etc.
Primary issue is that while reading is excellent, he can't get words out of his head and on the page (but not in a dysgraphia kind of way: for example, keyboarding makes only a small difference, and copying is OK). Our psych calls it a "discrepancy" rather than "disability" - but it's requiring his teachers to provide massive and time-consuming accommodations out of the goodness of their hearts, and without a diagnosis. Saying "he's fine, he just can't write" feels seriously inadequate when it's clear he would not have passed grade 4 without these radical - but voluntary! - accommodations. So I'd love to learn from your experience.
My son is having problems with not being about to get the words in his head out on paper. He doesn't have diagnosed dyslexia, but a written expressive disorder. Or at least that is what his neropysc said. He is 15 and a sophomore in H.S. and it's hard to believe I let it go this late. I am having a graduate student work with him one-on-one and he is getting some accommodations at school to help him. On top of things when my son has trouble getting the words onto paper, he gets really anxious and that makes things 10X worse.