I really like this page:

http://www.ncbi.nlm.nih.gov/books/NBK1279/

Also the conference notes from the most recent conferences:


http://www.ednf.org/index.php?option=com_content&task=view&id=2052&Itemid=88889219

That's 2011, there are links in the side bar to other years

Re EDS and intelligence - I find it interesting too, just recently I read a theory re the dysautonomia common in EDS suggesting something to do with differences in the mylenation of nerves, which is also something I've read about studies on IQ. But haven't had time to research either.