He performed today at a park with the rest of his musical theater group. The parking lot was quite a distance from the stage. By the time he walked to the stage and had to perform his feet hurt like they always do even though he has orthotics in his shoes, but his back is what hurts the most. Yes he can get a little stronger, but I think pain causes some of the fatigue and pain makes it harder for him to increase his endurance. He will probably have pain tonight and he can't lie down on a heating pad because he will be in the brace. Nights are very hard now but he is willing to go through the pain at night so he can be free from the brace during the day.
Happy Mother's Day Lori H. I'm happy for your son that he is able to be free of the brace during the day and that he is learning dances as fast as the other kids - what an amazing feat!
Sad to hear about this tough challenges he is facing, and my heart goes out to you as I imagine you must be suffering right along with in AND trying not to show it to be strong for him. Wow!
I get it that he can't sleep on a heating pad, but can he use one for 15 munites after a long day? What about massage? I've used balls for self message that look like these
http://www.gaiam.com/product/yoga+ball+body+therapy+system.dofor back pain at various points and found them helpful.
It is sad that he doesn't get to enjoy the fairs and festivals, but I'm so happy for him that he's found an activity that the enjoys and feels so at one with. So many kids don't find any activity satisfying except video games that I'm always impressed when a young person find something in the real world to immerse himself in.
Love and More Love,
Grinity
