HappilyMom-
I'm sorry things have been so frustrating for you. (We don't see OT until 7/24 and frankly I'm scared.) I have also thought knowing there are others in similar situations if it is something that doesn't have a name yet. Could very well be in my opinion.
Btw, my ds had a bad anxiety flare up re school. Still working on that:(
Sorry your trip didn't work out. We have one upcoming. He is soo excited, and we orchestrate the whole trip- making it successful for him.
Enjoy your happy guy, and focus on that for now (and the therapies). Hang in there. If nothing else, I completely sympathize and empathize!
