You go Inky!! That is the best analogy i've ever seen for this situation. "The squeaky wheel blah, blah blah" is a very true statement when it comes to advocating. One thing that I would suggest you do is learn the chain of command for your district. When the school fails to respond start climbing the ladder. It may take some time but eventually they will make accomodations just to shut you up!

Shari
Mom to DS 10, DS 11, DS 13
Ability doesn't make us, Choices do!