We ARE providing all his food ourselves. That's where it gets so frustrating
. While regular snack time is not an issue because he has his own snacks, there are times like the Valentine's day party or Christmas party or Movie day when the teacher either gives all the kids an extra snack (and supposedly check all the ingredients to make sure it's egg free, etc.) but also parents are allowed to send in pre-packaged snacks / candy with ingredients listed on them with the rule being NO eggs. And the teacher or TA gives each child some of that. I don't want them to give anything to DS but I guess they feel bad leaving him out and still give him some to take home and don't seem to check the ingredients as in depth as they should. I should probably bring this up to the principal or someone in charge but quite honestly I really LIKE the teacher and don't want her to get in trouble over this. I'd much rather educate her and work it out with her but I don't seem to get too far.
As for sort of "ignoring" the diagnosis, the reason is, we were never sure of the diagnosis in the first place. It was made last September after years of searching for answers and the diagnosis was made by an intern, so not a whole lot of experience there and we are still waiting for further evaluation by a developmental specialist. But since September he has gone through this strange (but GOOD) change and the only ongoing issue that remains is Sensory Processing Disorder. Something he's had ever since he was a baby and we never doubted that. But all those reasons why we started looking for a diagnosis ... we just no longer see them. Even his private OT dropped the frequency of the sessions to once a MONTH because she doesn't seem the need (she knows we work on the sensory part on a daily basis at home) so we just go in once a month for a check up to make sure things are not getting worse. ... This is a child that was getting twice a weekly OT and twice weekly ST just 12 months ago!
So, it's not that I want to deny the diagnosis or ignore it ... it's that he is no longer the child who received the diagnosis in the first place! ... and I couldn't be happier! Is it for good? who knows but it's a nice change! The only explanation we have is change of diet ... whether you believe it it or not (I wasn't much of a believer before but figured we'd try anything that was in our powers) ... and just weeks after we put both our boys on gluten free / casein free diet, they started changing, in good ways (the younger one completely lost his aggression and the older one as you can see lost most of the spectrum signs he was showing before) ... and in our case, it makes sense. With all the ongoing allergies, it could had been food sensitivities causing most of the problems. ... We have eliminated the allergens and things have gotten better.
Anyways, sorry for the novel! ... I just wanted to explain the reasoning behind not concentrating on the possible disabilities but rather on the abilities, because, for once we finally CAN!
