He has Aspie traits but is not Aspie( according to the neurologist that said- your son is a genius- very few people in the world like him his main issue is going to be for him to learn how to deal with the rest of the world.) when I asked his PANDAS doc if he thought he was Aspie- and he said does it really matter since we are dealing with a lot of the issues- i do admit he does have Aspie traits. The neurologists response to the scatter was- so in one area he is normal- technically it's a learning disability but no one is going to acknowledge it because he is so advanced. I said I still want to know what it is and did the testing- now seeing the results I wonder what to think because the tester said it's severe. Arrrrgg!!
BG, I hope you get good answers.
I'm a little surprised that they say "what does it matter" if the dx is complete and accurate. The whole point of dx is to differentiate-- that is, to get to the point where you know quite precisely what you're dealing with, which contributes greatly to knowing what to do about it. Treating PANDAS is quite different from treating AS. I would insist on getting them to be complete and thorough in making a diagnosis, and being very clear what they're ruling out and why.
DeeDee
