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    Joined: May 2024
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    Alex011 Offline OP
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    Hi,

    My son (11) has issues with school, down to level that I suspect trauma. So, we started testing so we can advocate for him at school and figure out what’s going on.

    The school wants to put him in special ed, even though he mainly gets average As and Bs without putting much effort into learning.

    My kid took WISC-V. I didn’t get detailed results. I was told that he is cognitively “unique”. His overall results were around 116. However, I was also told that he did the most of the subtests on an adult level, but got 1-2 low, and that the difference is significant.

    He also took tests at occupational therapist and they excluded any sign of learning disabilities, saying he seems years ahead in thinking and that school failed him.

    We were also told to consult neurologist and we did, but she wants to do a scan as the examination results were a bit off but not conclusive for a diagnosis.

    He also has vision issues, the ophthalmologist concluded that it shouldn’t pose problems with learning, but we still have to visit strabismus specialist.

    Psychiatrist suspected adhd. The attention test showed he is way above average on both visual and verbal attention tests.

    As a mom, living with his father that is in top 1% of population regarding IQ, all I see is a bright kid with occasional brain farts - just like his dad.

    Can anyone help me understand what are we looking at, what are possible diagnosis with all this in mind?

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    I’m a parent of 2 gifted kids. One is 2e with auditory processing disorder and a leaning disability called written expression disorder.

    Everything you wrote makes me think 2e.

    Some parent to parent advice:

    * typical schools don’t know what to do with a 2e kid. You need to find out what’s going on then go back to the school and tell them what those experts suggest. Communicate a lot, realize they may be very uninformed, make very specific requests based on data from experts.

    * unique WISC sounds like gifted & disabled. I don’t like that you don’t have details, maybe b/c the school did it? Go somewhere where you can get the details and have it explained to you.

    *OT can’t diagnose learning disabilities. Sometimes people overstep their skill base. I’ve had several professionals overstep their realm of knowledge trying to figure out what’s going on with my kid. If you want to find out if someone’s overstepping… bring up what one expert said to another. It makes them mad and then you get a better take on what’s data and what’s someone’s opinion.

    * I feel like everyone suspects adhd. It’s my pet peeve with how people approach my son. I feel like it is too commonly used as a catch all for symptoms and behaviors that no one knows what to do with. (I’m not saying ADHD isn’t real. For people who really fit the profile, the diagnosis is helpful).

    we took my son to a neuropsych that specializes in gifted/2e and that was super helpful. They confirmed gifted & learning disability. They gave us a report and recommendations for accommodations. That gave us really solid material to request a 504 at school. They also informed me a lot so I can then communicate to others. Def look for someone who specializes in gifted/2e, you won’t feel like such a unicorn/problem/unique to them.

    There were a few things my son does/has done that weren’t explained by the neuropsych report. The neuropsych report was super complex. I started reading about each thing. My son has issues with working memory. When I read about that, I came across auditory working memory and auditory processing disorders. The symptom list was very familiar and explained some of the things I felt weren’t explained already. I scheduled auditory processing testing with an audiologist and he was diagnosed. Audiologist also provided accommodations list for 504 at school.

    The neuropsych and the audiologist don’t work together and their diagnosis overlap a bit. The causes of certain things are different depending on who you ask. So, if your kid has a vision issue and a unique learning profile, you may not be able to get full agreement between the two.

    I would start with a gifted/2e neuropsych comprehensive evaluation. To find a resource look at local gifted organization resources, ask the schools gifted coordinator, or just start looking up people who write books or speak about 2e diagnosis to see if they have an office nearby.

    Be nice to the school and pediatrician, but know that they just don’t know enough to be helpful to you.

    My son had terrible anxiety around school and writing. He previously was punished for things related to disability. Appropriate accommodations have made a big difference for him. He’s much happier at school and has a group of friends now. His and my relationship with school & teachers is dramatically different and better. His teacher this year is supportive and values his accommodations (doesn’t find them a nuisance or unnecessary).

    Last edited by millersb02; 09/05/24 08:18 AM.
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    I would agree that further consideration of twice exceptionality may be in order. Depending on where you are, qualifying him for an IEP may include gifted IEPs. Even if not, eligibility for an IEP in the face of A/B grades is actually a likely sign that the school is particularly responsive to the needs of twice exceptional students, as many districts would stop at the grades, and not look further for any unique learning qualities. IEPs are not necessarily about low grades, as the eligible disabilities include, for example, emotional (e.g., significant anxiety or depression), autism (which can quite easily co-exist with strong academic skills) and other health impairment (which is typically where ADHD resides). In each of those cases, the skills in need of remediation in order for the student to access their education are not essentially academic in nature. E.g., emotional IEPs might address emotional regulation or coping skills, autism IEPs might focus on social skills, and health (ADHD) IEPs typically are written to work on executive functions and study skills. Even if a student is posting strong grades, if it is simultaneously (for instance) causing them emotional distress or requiring excessive time or effort, an IEP team can legitimately find that there is a need for specialized skills remediation.

    That they proposed an IEP strongly suggests that the school is seeing behavior in school that indicates some kind of lagging skill to them, even if it is not academic.

    (I would echo the comment above that an OT is not qualified to diagnose/rule-out learning disabilities. Be very careful about providers that make pronouncements outside of their scope of practice. They may or may not know what they are talking about in terms of fine-motor and upper body skills, but speaking out of school makes me a little leery even of their OT assessments.)

    On the ADHD-relevant measures: there are many dimensions of attention and working memory; it is unclear which aspects were assessed. In addition, ADHD comes in varieties that are notable for one or both of two aspects: attention/working memory and impulsivity. Most individuals with ADHD have the primarily inattentive type, with the second largest group combined (both inattentive and impulsive), and a smaller group in the primarily hyperactive (impulsive) type. (Some research finds a different distribution weighted toward the combined type in younger children.) A thorough assessment for ADHD should examine multiple dimensions of attention and inhibition skills.

    If the school conducted the evaluation, then you have a right to written reports. If the reports do not include details, you can request an additional meeting with the evaluator to review those results. They may or may not want to give you a copy of details, for intellectual property reasons related to the publishers, but even in that case, you can request (with a signed release of information) that they share all of the test details with a qualified evaluator of your choice, which would give you additional options for interpretation of the testing by someone with deeper experience with twice exceptionality and giftedness.

    If you had this evaluation done privately (not by the school), then you will have to go through this process with your private evaluator. Unfortunately, I have seen plenty of private evals that are unsatisfyingly short on specifics, so no guarantee that a neuropsych will be any better than what you have now. (Actually, after a couple of decades reading and writing evals, the worst neuro/psychological evaluation reports I have ever seen were from private clinic-based evaluators, not from schools. Not that there were a lot in this category, but those were the ones with no scores at all.) But at any rate, you are the client for the private evaluator, so one hopes they will be more communicative. Moving forward, do some rigorous research on prospective evaluators, including references and interviews, before you sign on with anyone. And make sure you provide future evaluators with all prior testing records, so they are not blindsided by invalid results from retesting too close in time.


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