My son, age 11, was put through the gamut of testing for the Initial Evaluation for IDEA. He was having issues at his school last year(2008-2009), so they skipped him to 6th grade (2009-2010) to challenge him. They at first pushed to skip him two grade levels, but I refused. I think it was more to get him out of his school than to benefit him, but hindsight is 20/20, and I might be a bit biased against the school.
His WISC-IV scores are:
VCI: 124
(scaled scores for subtests)
Similarities: 14
Vocabulary: 15
Comprehension: 13
PRI: 135
Block Design: 15
Picture Concepts: 16
Matrix Reasoning: 16
WMI: 86
Digit Span: 11
Letter-Number seq: 4
PSI: 78
Coding: 3
Symbol Search: 9
The school district has diagnosed him as ED and Aspergers, however general consensus is that the ED is merely a symptom of a lack of support for the Aspergers difficulties. He was like the lame wolf at the 6th grade middle school, and the rest of the kids were malnourished and starving, it turned into 3/4 of the PE class bullying, harassing, destroying my child.
We moved him from middle school 6th, to a smaller elementary school. Issues at that placement with the teacher who just refused to understand that he couldn't help being him. He was then in February 2010 moved to an all-inclusive ED classroom. He didn't flourish but neither did he sink, and fear was a tactic used in that classroom.
In Texas for Kindergarten he was placed in a gifted program after scoring in the 99th percentile on the NNAT.
He's always been an original kind of kid, one that made me fall in love with him everyday. He is the 2nd oldest of five children. All of the kids have FSIQs in the 130's. He was reading chapter books by 4 years old, at 5 his favorite subject was infinity, in first grade he did pre-algebra for fun. At one people mistook him for a three year old by how articulate he was, and oh my God the obsession with the human body books. I must have bought 30 different ones, so he could consume them over and over. When he made me tuck in his best friend (a rolling child's suitcase) I did with love and tenderness. When the suitcase evolved into the 2 x 4, I helped him include his BFF in our activities.
What did I do wrong? It is like he's regressed? He has been diagnosed 4 years gross motor delayed, I thought it was cute at 2 when he walked on his tip toes. I thought it was funny when he was 4 and couldn't grasp the concept of throwing yourself onto the slip 'n slide. I adored how he would seem to trip over his feet at 6, like a great overgrown puppy.
None of these things bothered me, because it was just him. It was just like him to answer the door at 3, stark naked, wearing his sister's easter hat and purse to greet my ex-husband's coworkers at a dinner party. Those are my most cherished memories, yet they tell me they were signs. Signs of what? A child who brought joy, smiles, and love every where he went? If those are signs of anything, I think the world then needs more of them.
I don't "get" why his processing and memory scores are so low. I admit he is a slow to go kid, but just another thing I accepted... but something the school hates most. He is in the GATE program, and they continue to talk about how "profoundly gifted" he is (his WIAT scores not including written were 99.9th percentile), and his CA STAR tests are well above proficient levels. His written work is non-existent, he uses a really weird grip that the OT said is now "locked-in".
His favorite subjects are science and transformers. He has no friends, and they say his social skills are way way below age level. He only really gets along with his yonger brother, age 9, who has kind of similar OCD tendecies for some of the same things. My youngest son, age 6, was diagnosed with Pragmatic Speech Disorder and Emotional Withdrawal two weeks ago, and his symptoms mimic aspergers very closely. I am confused about that but that's an entirely different post. Suffice to say, only one of my five has been cleared of any learning disability my youngest daughter, age 8.
The doctors have asked me if I have thought about doing genetic testing, my reply "for what?"
I am not quite sure how to phrase my questions, other than why? Did I do something or not do something? When they were all babies we have such a fabulous time playing at home, making up ideas for our community dream home, who we'd help if we won a million dollars, etc. I didn't have to worry about if someone is going to try and take advantage of his naive and trusting self. I don't worry that someone's going to say something vicious, but he thinks they are saying in a joke between "friends" way, "Mommy, she's my friend. Mommy, it's okay that she calls me fatty. She is my friend, Mommy." I am choking up, as that was when I started realizing he doesn't understand.
I am traumatized by what happened at the middle school to him, he is now supposed to go to another middle school into another ED classroom, and I just can't do it. I am looking into homeschooling him. But I also think something else is wrong? Why would his working memory and processing speed be so low, and why is he reverting in behavior and coping skills? Is this going to happen to my other two boys?
I am severe ADHD (GATE in grade school) myself. Did I somehow cause this? Was I ignoring the signs when he was younger? I just feel like everything has moved so fast, from us just having the daily struggle to something new and yes it makes me feel that I am inadequate or some how failing him (all my boys really). His cognitive ability has gone down, his ability to cope, etc. All I want for him is to be able to productively go in pursuit of happiness and succeed in life as a capable healthy adult, but I am not sure how we are going to get there.
I want to stand there one day, and say "Baby, you did it. You did it."