Wow, I was just sent
this article by a friend in Minnesota who has been following our saga. It was the first time I had heard of POTS. It doesn't seem to be what ds has - his heart rate is actually quite low (in the 50s), but it almost had me in tears I was so grateful that someone cared enough to both believe me that this
was not normal and tried to offer a solution.
I hope you have found at least part of the answer for your son, and please don't apologize for the length!! On a practical level, I do appreciate reading about others' experiences and learning more, and on an emotional level, it's just nice to know I'm not alone!
