Maybe you could get testing done with someone who specializes in gifted and 2e. He/ she may be more able to read/ understand your dc. Also, in my experience, the tester has also offered lots of advice and resources.
We did private testing, because we needed answers about ds, and the school thought everything is fine. One of the things the testing did for me (and dh) is we know we're not crazy. He is. Our school district will use outside testing as "supportive" data. We'll see.
Yet, the outside testing (which we paid $2k+) was well spent based on what we learned about ds and the best ways to support him. Also, I feel like the tester is an amazing resource!
Good luck! Keep us posted.