I think that there is a component to this which relates to being data-driven people and parents of HG+ kids, too. We're used to ONLY making evidence-based decisions. The more data the better, right?
Only here, there is no road map. Each and every HG+ child is a completely unique individual in multiple ways, and there is no 'evidence-based best practices' to work from in most ways. Oh, sure-- we know what the negatives are for any particular set of decisions... and we have anecdote from those who have gone before us... and we know our own kids.
But we don't even have anecdote which reflects our child's current and future circumstances (due to shifts within cultural and educational practices) nevermind those which reflect our child's individual asynchrony at any one point in time-- which is also a moving target.
In other words, we're all flying blind and working with very little beyond what our gut-level feelings about choices tell us to do, and observations about individual outcomes after we have made those choices.
Not easy for people like my DH and myself. We are problem-solvers who are very evidence/data-driven. This business of relying on instinct to make good decisions makes us crazy sometimes.
