The regular pediatrician doesn't seem to know very much about motor dyspraxia and hypotonia so she can't help us and like my son says, she gives us the same "cliche advice" meant for average kids and he is not the average kid. We might be able to get a referral for a neurologist if the developmental pediatrician recommends it--if my son ever gets to see him. I am hoping this developmental pediatrician at a university child study center will know more about motor dyspraxia and sensory issues and hypotonia and be a little more helpful than other doctors we have seen.
I hope the referral mess gets straightened out. How frustrating though I'm afraid I'd say based on our experiences these sorts of mix ups are par for the course.
I would try to keep your expectations not too high for the evaluations. They are worth doing for sure, but in our experience there aren't always really clear cut treatments for hypotonia or dyspraxia. You may get what sounds like cliched advice like enroll the child in OT, karate, swimming, etc. This advice initially struck me as cliched, but down the road I will admit that it helped.
If I could just find answers, and feel like we there is help available when we need it without waiting for months, and get some kind of assurance that the doctors we see are well trained and experienced, then I would have less anxiety. I don't know how they would be able to treat this kind of anxiety without giving me help for the problems that are causing it.
Please take this as advice from a fellow anxiety sufferer and hear what is intended to be a very kind tone ... Lots of people get terrible stuff to deal with and not all people suffer from that terrible stuff equally. You've got a heap of stuff on our plate. No question about that. Getting help for anxiety really can help. Therapy, meds, etc. all can help get a person through. If nothing else you are modeling for your kid that when you need help you ask for it.
Take care.
