Also, Irena, there is not currently any gene test for EDS hypermobility type (which I would guess is the type that has been diagnosed). So diagnosis is by a checklist of features that actually are pretty easy to determine - the features are there or they aren't. It's great that his symptoms are mild now, but knowing he has EDS allows you to understand the risks and hopefully avoid problems in the future. It will also allow you to be on the watch for co-morbid issues that are often overlooked or misunderstood.