Lori, I have mentioned before how similar our sons seem to be... My son also has hypotonia and most recently dysgraphia. I would definitely call my guy verbally gifted. When I took him to CHOP they said his hypotonia was mild now. His joints, however, are hypermobile - particularly his fingers and, like your son - the top joint. They didn't want to do a bunch of tests or do an MRI on him but one thing they did put in the recommendations was "to follw up with the CHOP connective tissue clinic" "given the finding of increase laxity of joints." I didn't gibve it much thought actually. Of course, now I am. How did they finally diagnose your son? Is it through genetic testing?
