And people have told me for years that I should get therapy for my anxiety and stop looking for answers and just accept whatever the doctors tell us. It was the same with the education issues.
I feel lucky to have the anxiety and my gut feeling that something wasn't right about the things I was told by experts.
Sadly, mothers, in particular, have to do this all the time.
In my experience Marfan's is generally not something that doctors are going to look for. I've only had a couple of cases where that was an issue.
Is it connected in any way to the appearance scoliosis?
One mother who my wife is friends with only got a diagnosis of cystic fibrosis when her son was about 8. And she had been taking him to pediatric hospitals for years.
There's a ton of misdiagnosis and missed diagnoses out there in the medical field.
Hemochromatosis (overabsorbtion of iron) is another one that's missed. I had one of those cases last week.
One condition for which the old medieval treatment of periodic bloodletting is an excellent treatment.
