MK13 - I TOTALLY know how you feel and once "they" start looking at everything through a certain lens (label) it's very hard. I totally sympathize. Autism and ADHD Dxs are BIG in our area and it is what everyone seems to want to leap to for some reason. The upside of your situation is that at least your getting you son help earlier .... I was almost two years behind you! I would have loved to get on the OT and VT earlier... Please follow you gut instinct!
Anyway, I went to a neurologist with my son to get him looked at for the hyptonia and hypermobility...The diagnosis has proven invaluable. If you are near the Philly area, I could give you some names/recommendations. I am taking DS in May to see a neuropsychologist. I have high hopes for her.
I wanted more testing on DS (like an MRI, etc) but both neurologist and the neuromuscular sepecialist just don't think it's worth it b/c he's so high functioning and an MRI would require sedation. The sedation does make me nervous so I didn't push - it would be a lot to put a kid through, I think. I am taking DS to see a connective tissue specialist in a few months (at the recommendation of the neuromuscular specialist) - I'll see what he or she is willing to do test-wise and see what her/his take on DS is.
These issues (at least my DS's) are neurological so I am realizing our DSs needs "neuro" people ... General psychs and educational (IU) people, have been pretty darn useless and in some cases, harmful for us. I think you need a neurologist (and he/she can recommend further specialists if necessary) and perhaps a neuropsych (at least eventually). Others further along in this path or who have different experiences/perspectives, will hopefully chime in. But that's what I think.
I hope that helps. Please keep us updated, I'll be following !
