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    Joined: Aug 2011
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    DD12, sixth grade, has been diagnosed with just about every possible LD and processing issue. She has been OOD at a spec Ed school since 3rd grade and is now able to read at or above grade level. It is still well below her HS/college level comprehension but I am so proud of how hard she has worked to get here. She now reads for pleasure - both fiction and non fiction. She is slow but can do it.

    It is becoming more and more apparent that she has outgrown placement at the spec Ed school. I am looking at options for next year and am leaning towards a small private that allows students to explore topics very deeply - to fully experience learning through all senses. It does not offer spec Ed so I need to figure out what I need to have in place in order for DD to be successful. We are in the process of getting new AT eval, math IEE, new neuropsych/psychoeducational eval, speech eval, etc.

    I just don't know what dyslexia intervention is supposed to look like once you reach grade level competence. The reading intervention teacher at her special Ed school has been fabulous. She was the first to really "get" DD and her 2E profile. She used Wilson for 2+ years and then introduced Lindamood Bell. DD still works with this teacher and has been doing a 1-1 HS literature curriculum with her since 4th grade. This is the one person I would hate to lose from DD's program if we change schools but the rest of the program isn't challenging enough.

    There is a very good OG program not far from the small private which we may be able to contract with. Or maybe hire this wonderful reading teacher to work with DD privately. But I'm just not clear on what a reading intervention program should look like at this age. We're past decoding and don't need to work on comprehension. So where does that leave us? What do I ask for?

    Any and all input would be very much appreciated.

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    aeh Offline
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    The reading intervention that you would need next is for fluency. I would suggest Read Naturally, or, even better (though less familiar to schools), HELPS (http://www.helpsprogram.org/). HELPS has the advantage of being very low cost, and fairly easy to implement (easy enough that you could do it yourself, or hire a responsible college student to do it). It also has a respectable research base.


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    You might try reaching out to specialized schools for dyslexia for a recommended next step. Hamlin Robinson is one such school in Seattle.

    The Landmark School is another one that comes to mind. I think they both do outreach. Maybe they could do a phone consult with you, your daughter and the good teacher and help come up with a plan.

    You might also try posting your question on the Dyslexic Advantage message board.

    I know some dyslexics believe OG and Lindamood Bell will only get you so far and then it is time to learn the best work arounds like training yourself to listen to audio textbooks at an increased speed. I'm not sure when or how one decides that time has come.

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    Thanks so much aeh and KJP! It looks like HELPS may be something teachers at the tiny private could do even without a reading intervention or OG specialist. They are *very* small and *very* individualized - apparently have 4 different math programs going for 6 same grade kids - so this might be a very good option. Thank you! I have been in touch with Landmark - great idea to see if they can help me figure out next steps.

    This leads me to another question. Tiny private says they focus on teaching students how to properly write research papers. I have been focused on alternate projects for DD to show her knowledge but my conversation with this school got me thinking that it would be a good idea for DD to learn how - in her own way of course - to write a traditonal research paper. Any feedback on what we would need to teach/train her to do for this to be a possibility? Anyone with an older severely dyslexic/dysgraphic kid who has successfully crossed this bridge? Typing is slow with totally off the wall spelling that autocorrect can't figure out. Voice to Text in CoWriter - when it works - is much faster. But it is so hit and miss she tends to fall back to typing which I can't see being anywhere close to good enough for her to complete a legitimate research paper.

    We are supposed to be getting a new AT eval soon. I have been asking for training in note taking and how to work with various digital files in order for DD to learn how to make movies and/or other audio-visual type presentations in lieu of writing papers. I would still like to do that but am now thinking we also need to try to make research papers a possibility if we can. What AT would we need to look at having in place?

    DD is severely LD - last psychoeducational eval 2 years ago suggested giving up trying to work on spelling so we need to focus on workarounds. As I type I am realizing that reading at grade level is only part of the dyslexia puzzle. Spelling - and therefore writing - are also affected. Other than fluency are there other areas I need to focus on that I haven't thought of?

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    aeh Offline
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    In the AT for spelling category, one strategy I suggest to those whose spelling can't even be recognized by autocorrect is to use the thesaurus function. Input a simpler synonym for the word you really want, hit thesaurus, and then select the word of your choice from the dropdown. This might work in combination with speech to text in CoWriter. Use dictation for a rough draft, picking simpler synonyms (which either the speech to text will have an easier time recognizing, since they are more common, or that she may be able to type/spell close enough for spellcheck/word prediction to figure out), then on the typed revision, upgrade the vocabulary using thesaurus.


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    Wow, Pemberley, it sounds like you have found a fantastic school option, one that really means it when they claim to individualize, and is willing to provide the specific kinds of remediation and teaching your daughter needs. Wonderful!

    For what it's worth, here's some pieces of our journey so far, with hopes that something in here will be helpful and not just repeating things you already know. There's lots of cool technology out there we haven't tried yet; this is more of generic "what are the skills we have to work on" kind of story. I am going to count on aeh correcting me in all the spots I go wrong and misquote her, though.

    With respect to reading, as I understand it, the flow of skills is loosely from decoding to fluency to comprehension, recognizing there's lots of reinforcing between each. The most challenging piece is the higher-level comprehension skills - making inferences and connections. When DD finished her OG remediation (about a year and a half ago), she was terrible at this. She could tell me every factual detail about what happened in the story, but ask her why she thinks someone did X, or if she's ever been in a situation like that character, and she was just one big blank stare. (Fortunately, aeh had primed me to expect this, which helped subdue the panic. It was a VERY blank stare on what seemed like very basic questions).

    We didn't end up using any of the specific programs aeh suggested yet, because DD's teacher last year seemed to be giving her exactly the kind of homework assignments she needed to address this weakness. Every week, she did a "reading response" as her homework, which slowly increased in complexity and worked her stepwise into being able to extrapolate from what the story said to why she thought the characters made the choices they did, how they related to each other, how events in their lives related to events in DD's own life, or real life, or other stories, etc. It seemed to be exactly what DD needed, and I saw clear improvement.

    As for fluency, all we did was keep her reading aloud to us every night, creeping up from a paragraph to a page to every other page to a chapter. She has progressed astoundingly, and now (grade 5) reads for pleasure a couple hours a night (holy yikes and yeah!!!! It's been amazing to watch). I'd note that in the early days post-remediation, she would have me re-read the parts she read out loud, because otherwise she missed too much. Over time, she needed that less, and now not at all. (I should note that reading out loud requires dyslexics to do something quite different than when they read silently; it's way more difficult and demanding to read every part of every word, and not just skip from one key word root to the next). The improvement in her ability to both read and comprehend at the same time was quite visible. She may alternate between Eragon and Thea Stilton, but interspersing lots of really easy texts seems to keep her confidence up and energizes her for the harder slogs (random aside: did you know Eragon was written by a 15 year old, obviously very gifted kid with a ridiculous vocabulary? Cool role model).

    So as far as I understand it, these are the key skills to work on next. Our DD is much less severely affected by her LDs than yours, so we have gotten away with less structured approaches, but I think the resources aeh has suggested address similar needs, but more systematically. Interestingly, DS (grade 7) is neither dyslexic nor dysgraphic (still a mystery that kid. Working hypothesis severe inattentive ADHD, expressive language, and not sure what else messing up the writing? A flavour of ASD-ishness about him too). Anyways, two years older, and the more this stuff gets easier for his sister, the harder it gets for him, despite reading way beyond grade level for years. He's in a pretty intellectually-demanding gifted class, and remediation on the side is not feasible - we're drowning in incomplete schoolwork as it is (argh). But I've spent the last two years trying to build these principles and skills into mentoring him on his homework every night.

    For him, structure is really critical. The more we can make the task visual, ordered, a coherent pattern, and even better, a set of rules, the better. So graphic organizers, mind maps, etc, are really helpful. I made him a diagram of the five-paragraph essay, with a breakdown of the role of each sentence within each paragraph. That helps. He draws (bubbles and connectors) his thesis, main points, key evidence, etc, to make a visual map before he starts writing. (There's some good software and apps for this too. We use Inspiration but there's probably a ton of newer options. Look for something that takes your visual map and transforms it into both essay structure text and slides. The goal is not to have to rewrite anything, just keep expanding the text). With respect to to content, I recognize that any task with inference is liable to send him under the table sobbing, so those are particularly heavily supported, with lots of Socratic Q&A before getting near the keyboard, to ease him into it.

    For research-based projects, he's found the highlighting function of google Read and Write quite useful (I think Co-Writer does this too?). When he diagrams his paper, he'll assign each major sub-topic a colour. As he does research on the web, he highlights key info by topic colour, then pushes a button that dumps it all into a word processing file, sorted by colour, and including links to where the text came from. He can then rearrange the selected text within each topic area into related clumps. Bold key words that might end up being sub-headings or just key points. The result is a reference document that basically gives him the structure and flow of his paper, so now he just needs to put his words around it. We're also thinking of trying him on some basic project management software - Gantt charts might help Mr Visual break down big jobs into manageable tasks, and better understand the concept of timelines... we hope.

    For DD the ideas and words come easily; it's just writing them down that's the problem (in contrast to her brother, where finding the ideas and especially the words is the big problem). So I mostly just count the days until puberty gives her a more voice-recognition-friendly voice frown . To survive in the meantime, she jumps between voice recognition, word prediction, and just plain typing, whichever is the least annoying at the moment. All three take practice and training to be more help than hindrance (but I think your DD has had lots of that?) Word prediction can be a big help. Also, for DD I will still occasionally scribe on a big project, when thinking about spelling just gets too much in the way of thinking, or it's just plain taking too long. (We are still (slowly) beavering away at All About Spelling, just to try to reduce how much it gets in the way of her *thinking*). Recently, for example, she wrote a story. Took a week to write three pages, then she added 6 more in a couple hours with me scribing. (She's starting to get the hang of punctuation, so I scribed verbatim, and let her add in all the needed punctuation afterwards). I also sometimes read her stuff to her, as she still finds it easier to identify errors (both in grammar and content) when hearing it vs seeing it. She'll use the text-to-voice for this as well, but it is an annoying voice...

    OK, as always I have gone on way tooooooooooo long. Hope there's something helpful in all this.


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    Big sigh...

    Visited the tiny private today. Despite my intriguing conversations, their enticing website and raves from people who are familiar with them it was a huge disappointment. Every question about how workarounds for LD issues would be handled was answered with comments about laziness, fear, unwillingness to try new things, need to adapt, having learned to tell themselves "no" when faced with a challenge, etc. Zero flexibility. I don't know why they talk about individuality - there is none. Turns out to have a *very* strict structure. It did not bare any resemblance to the conversations I had with them. Bummer...

    But even worse was the effect on DD. All those terrible voices in her head from early in her journey when people just couldn't believe any of it could be real. She was so shaken up.

    After dropping her back at her spec Ed school DH and I has to sit with her and the SW for a half hour in order to debrief. As DD said "This experience opened so many old wounds..." She kept saying "Why would anyone say that to a kid? Especially a kid who has worked so hard and is trying to transition out of a special Ed school?"

    So unless I can locate another viable alternative that has a chance of "getting it" I guess I have to focus instead on redoubling efforts to get the spec Ed school to meet her high level needs instead.

    So disappointed...

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    The only positive I can see in that is maybe the wounds will heal better this time because she can see it is bad teaching to behave that way. Strange how what is said and done can be so different.

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    Good point Puffin. Thanks. I will try to spin it that way. Maybe I can turn it into an empowering experience. I can try anyway...

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    Your poor DD - it's so difficult for kids with LDs! Tell her that it wasn't personal - the school's mission is to be profitable and meeting her needs would not be profitable. Private schools don't have the same obligations that limit public schools so they can keep out "expensive" kids. Her best bet would be to either find a good gifted program at a public school with a solid special education department or a 2E private school. I toured a couple of great 2E privates a decade ago for my oldest and they got it. Of course, they were about twice as expensive as the prep schools.


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