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    #85447 09/20/10 11:17 AM
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    kd976 Offline OP
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    So after a lot of deliberation and a few months of counseling, we decided to take our ped's and our psychologist's advice and do a trial of Vyvanse.
    Started on 20mg on Saturday... Noticed a HUGE difference during swim lessons that morning, but the rest of the day was "business as usual".
    Sunday (yesterday) the big difference is that he sat and colored almost ALL day.
    Both days he was VERY talkative (way more than usual) and he had problems napping.
    Today he's at school, so I'm half tempted to email his teacher to see how he did today. Or should I leave it alone for a week and see how it goes then?

    How long did it take for you to notice a change in behavior when you started your kids on meds? Was it a BIG change or just little things?

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    I can't remember - and after the medication Merry-go-round who could remember?

    I would say that the prescribing doctor will probably want to increase the dose until it's 'too much' and then back off a step. 20mg is quite small. I wonder if it's wearing off at naptime?

    Talking to the teachers is ok if it will help pass the time. I read that giving a child medicine tends to make parents and teachers behave better.

    Hugs -
    Grinity


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    We recently went through the Merry-Go-Round to which Grinity is referring! We also started on Vyvanse. Our doctor recommends giving a new medication or dosage a 3 day trial. She initially told us one week, but then she said usually you can tell by 3 days. You just don't want to make a judgment based on one day in case there are other factors involved. You are looking for a pattern. Because today is the first day of school, I'd probably give it at least one or two more days at school, and then see if the behavior, focus, etc is consistent. If so, then you can tell the doctor specific times he seems to be focused and other times when he is not. This might let you know how long the medication is working for you. You'll also be able to look for side effects.

    That said, you should be able to tell a difference in one day. It's not the type of medication that has to build up or anything. It works for the day you take it and is gone by evening.

    Also, these medications works so differently for each kid, so keep that in mind when hearing about others' experiences with specific medications. For example, Vyvanse didn't work for us b/c dh became very weepy and sad. Concerta works pretty well for him but doesn't change his personality. Conversely, I know others have had the opposite experience.

    I'd be very interested to hear how it goes, so please let us know how his day went. Good luck; I know it's hard to make the medication decision, but it's definitely been the right choice for my ds. It's not a cure-all, and we still have our share of issues, but it definitely helps him so much. Prior to medication, just writing his name was torture. I think this was due to working memory deficits related ADHD. The week he started medication, he came home, pulled out a blank notebook, and announced that he was writing a book. And he's still working on it! Voluntarily!

    Will be thinking of you! I was there not long ago! Good luck and best wishes to your family.

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    Hi KD,

    Vyvanse and most of the stimulant ADHD meds work fast (that day) and wear off fast (that day). I'd say you'll notice it right away, but it may take a few days for you to see enough evidence of the up and down sides to know whether it's right for your child.

    That particular med ramped up my kid too far (it was like several cups of coffee-- really fantastically focused, but also on a hair trigger and tipping over into overemotional some of the time). After trying several stimulant meds we ended up using a non-stimulant one which he tolerated better.

    DeeDee

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    Vyvanse - which worked so much better than the other stims for my DS14 - does have a really long half-life. So it might be the exception to the rule that stims don't build up in the system. I'm sure that this is different for each kid and each does as well.

    Best Wishes,
    Grinity


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    kd976 Offline OP
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    Originally Posted by DeeDee
    That particular med ramped up my kid too far (it was like several cups of coffee-- really fantastically focused, but also on a hair trigger and tipping over into overemotional some of the time). After trying several stimulant meds we ended up using a non-stimulant one which he tolerated better.

    DeeDee
    That was him on Sunday. He was totally focused on drawing/coloring/writing in his new calendar ALL DAY LONG. It was crazy. But then I made something for dinner that he didn't want and he absolutely broke down and sobbed... BUT he's done that before (broken down) but the focused thing all day was new.

    I haven't really been able to see how it's affected him during school, but he says his days are good. And they just started their NWEA testing this week, so I guess it was (hopefully) a good week to start the meds?? My friend that brings them home from school said he's been really good on the rides home this week, whew.

    We have a follow-up appointment with the psychologist on Friday morning, so we'll see how that goes.

    Thanks again for all of your input. I know each kid is different, but it's still nice to hear other's experiences.

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    Good luck kd! It's so hard to wait it out. Will the NWEA tests help with advocacy?
    Grinity


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    Hi, KD--

    As you accumulate more days, you'll start to have a good sense of whether the upsides of a given med are worth the downsides (side effects). Our longest trial that ended unsuccessfully was I think close to three weeks (it ALMOST worked...) and the shortest was three days (simply could not stand it). The three-week one was really close to working, but the emotional volatility started to outweigh the focus.

    You'll know.

    Best wishes--
    DeeDee

    edited to add: find out when they expect it to wear off. Some kids get more weepy when the dose is at peak effectiveness, some as it wears off (that has to feel funny...). That's worth noticing, it helps the doc decide what to try next if there has to be a next.

    Last edited by DeeDee; 09/22/10 03:32 PM. Reason: added a thought
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    kd976 Offline OP
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    He got all sad and bent out of shape when one of the babies my friends watches grabbed one of his coloring pages.

    It seems as if he's been over-excitable right after his bath/shower time. Which would be at about hour 13. Is that normal?

    I got a snotty email from his principal today when I asked about the MDT/IEP. Kind of pissed me off, actually.
    Quote
    I don't think we need to do an MDT/IEP at this time. His needs are being met in the classroom, and there are many ways we can extend the curriculum to keep him challenged. Special Education services are not only about test scores - they are also about a need for specialized instruction. Because of our multi-age classrooms, and our development of our own curriculum, we are able to meet needs for students who are gifted while they're in the classroom
    I don't think his needs are being met - the reason I say that is because he FLIES through his homework and tells me that everything is "super easy" and that he "needs a challenge" in class. So needless to say, I need to meet with her, ASAP...

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    Originally Posted by kd976
    It seems as if he's been over-excitable right after his bath/shower time. Which would be at about hour 13. Is that normal?

    KD, I don't remember how long the Vyvanse lasts in the system, but I do remember that some kids find that "wearing off" feeling really tough to deal with (like coming down off your caffeine buzz). It's a question to bring back to the prescribing doctor for sure. A good doc pays attention to these details if they form a pattern.

    Hang in there with the negotiations. Have you ever brought in an outside expert or advocate to talk directly with the school? At some moments this has been key for us.

    Thinking of you,
    DeeDee

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