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    Joined: Apr 2009
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    What a terrible experience - sorry that happened. This was not an acceptable length or detail for investigation for something as serious as using medication for a five year old. I would not go back to that doctor and if your pediatrician made the referral I would give him/her feedback on what happened.

    Do you have the option locally of seeing someone who understands gifted children? Has she had an OT evaluation? Those might be places to start.

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    http://www.incrediblehorizons.com/mimic-adhd.htm

    I did not read your entire post, but my dd was supposed to be ADD/ADHD. We did a ton of testing and discovered that she had a visual perceptual issue. Maybe you can look at this list and knowing your DD as only YOU can, something will pop out at you!

    Good Luck.

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    Originally Posted by giftedticcyhyper
    Well, my son has been diagnosed with AD/HD but I'm not happy with the diagnosis. I've come to believe that AD/HD is really just a collection of behaviors that teachers don't like. There are so many different subtypes that anyone can truly be diagnosed with AD/HD now. Underneath that AD/HD label, there could be sooo many different things going on. Examples are the things listed by crisc: sensory, giftedness and also, immaturity. So, I think what you've really learned here is that your doctor isn't going to help you. That's usually the case, I think. So, you are going to have to get to the bottom of it yourself AND you're going to have to do something right now to make things better.

    For right now, I'd try fish oil and 123 Magic (the book) and remove most dairy. I'd also find someone to teach you the wilbarger protocol. Amazing results with impulsivity. None of these things can hurt a normal child but you may get results with one of them.

    For long term, I would try to figure out what is triggering her. What excites her and makes her impulsive? It could be a certain type of activity or sensory stimulation. It could be something that just cycles with time. You'll have to put those days on the calender and see what's going on. Also, what's going on with her intelligence and academic needs? Does your daughter suddenly behave when she's learning something interesting?

    Thanks smile We started fish oil about a week ago, and I have noticed an improvement. I didn't think about cutting out dairy, though. I have always used the 1 2 3 magic with my kids, and I will look into wilbarger protocol.....can I google that?

    As far as what excites her and makes her impulsive......she just seems to not know how to stop herself from grabbing things off a shelf at the store, coloring on things she shouldn't, and basically doing things she knows are wrong/not allowed. At 5, she is still putting non-food items in her mouth (marbles, money). And I can't let her play with any type of scarf, boa, pet leash, rope because she will wrap them around her neck or body. crazy Sensory issues??? It scares the junk out of me.

    She loves older kids, and seems most engaged and behaved with them. But she will tend to show off, and be very hyper too.

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    I would definitely get a 2nd opinion(or 3rd...) and keep digging until your gut tells you you're on the right track. You may end up back where you started, but then again, you may not! Based on your post I sense you feels somethings not adding up.

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    I thought ADHD couldn't really be diagnosed until 7 y.o.? Anyway, I agree with everyone above about getting a second opinion. Other things I'd look at, if you haven't already: the DSM criteria to see if *you* think they apply http://www.cdc.gov/ncbddd/adhd/diagnosis.html , and yet another book, the Eides' The Mislabeled Child. And as someone mentioned, it might not be a bad idea to have the vision angle checked out with an optometrist from http://www.covd.org/Home/AboutVisionLearning/ADHDVision/tabid/112/Default.aspx .

    Dumb question re: impulsivity that you've probably already thought of, but is she getting enough sleep? (could there be allergies getting in the way of sleep? This is something I'm currently exploring with one of my kids who is driving us all nuts for no apparent reason in an impulsive sort of way; he has allergies and really swollen tonsils for months on end and it finally occurred to me - duh - that perhaps it's interfering with his sleep, making him overtired - he's super-wired. I'm anxiously awaiting our next checkups with the ped and allergist though of course they aren't for a few more months)

    Putting things in her mouth does sound sensory (I agree about finding an OT place that specializes in SPD - try here http://www.spdfoundation.net/directory/index.html )

    As for the strangulation hazards, that doesn't seem out of the ordinary to me - I'm constantly telling my kids to take them off lol.

    just my two cents
    smile

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    We had her vision checked at a ped opthamologist (all was good), and she sleeps like a log at night. She meets 90% of the criteria for hyperactivity-impulsivity ADHD.

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    Yes, dairy makes DS6 act nuts! We'll have trace dairy in packaged goods and the occasional buttery cookies but milk, cheese, ice cream and yogurt are out. Unfortunately, I couldn't find the wilbarger protocol demonstrated online but it might be on youtube. Have you checked out websites like these?

    http://www.specialkidszone.com/

    I don't trip over the sensory issues stuff. Everyone has sensory issues. It's just that in certain kids, they're a little more intense or the kid is just an intense person and reacts strongly. People grow out of it. I would try to identify though, whether it seems to be visual or auditory stimulation that excites your child. For example, I've noticed that when it's quiet, my son behaves. So, he does well out in nature and in generally quiet environments like montessori. He does badly in large stores or crowds. A big auditory experience will overload his system and he'll misbehave for days. Putting stuff in the mouth could be a tactile seeking behavior. You could buy her a water bottle with a straw to replace that or provide some other appropriate fidget. The Wilbarger helps with tactile stuff.

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    On the vision angle, a ped opthamologist, for the most part, is not going to find the things a behavioral optometrist will - it's not the same type of evaluation (there are rather few opthamologists in covd.org; most are optometrists, long story). My DD8 was checked by a ped opthamologist a couple years ago and all was good; that same month when we took her for IQ testing, the testers said she might have a vision issue. Took her to an optometrist (this was about two months after seeing the opthamologist), and lo and behold she had an eye tracking problem. It's fixed now thanks to vision therapy. Of course, that doesn't address a lot of the adhd symptoms but I just thought I'd throw that out there, just as a little FYI.

    Besides the second opinion, the other, probably less desirable option is to try the medication for a limited time to see if it helps. But I were in your shoes I'd probably feel better if I felt sure about the diagnosis first. Is there something specific from the diagnostic criteria that she's missing, or does your 90% figure just come from your not being 100% sure? What kind of doctor was it?

    Good luck, I hope you get this mystery figured out soon!

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    Originally Posted by snowgirl
    On the vision angle, a ped opthamologist, for the most part, is not going to find the things a behavioral optometrist will - it's not the same type of evaluation (there are rather few opthamologists in covd.org; most are optometrists, long story). My DD8 was checked by a ped opthamologist a couple years ago and all was good; that same month when we took her for IQ testing, the testers said she might have a vision issue. Took her to an optometrist (this was about two months after seeing the opthamologist), and lo and behold she had an eye tracking problem. It's fixed now thanks to vision therapy. Of course, that doesn't address a lot of the adhd symptoms but I just thought I'd throw that out there, just as a little FYI.

    Besides the second opinion, the other, probably less desirable option is to try the medication for a limited time to see if it helps. But I were in your shoes I'd probably feel better if I felt sure about the diagnosis first. Is there something specific from the diagnostic criteria that she's missing, or does your 90% figure just come from your not being 100% sure? What kind of doctor was it?

    Good luck, I hope you get this mystery figured out soon!

    I meant to say it was an optometrist that she saw. They did a bunch of tests. We originally went there because of a blinking/facial tic. On the CDC list she meets all the criteria for the hyperactivity section, but only 1 for the inattention section.

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    I'm so sorry. I would definitely get a 2nd opinion! I'd be very wary of getting handed an RX after a single appointment that went so badly. Especially with such a little one! Drugs are necessary for some kids. But definitely seek another opinion! Find a doctor that really tries to "get" your child. I think that is so important.

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