I don't have a premie but thought I'd respond to your post anyway. I do have twins but was fortunate to be able to carry them nearly to term despite being on bed rest from 26 weeks.

As you probably know there is a lot of documentation of cognitive problems for very low birth weight babies. Here's just one article I pulled up by googling very low birth weight cognitive disabilities

http://aje.oxfordjournals.org/cgi/content/full/154/10/895

Has you child been assessed for special ed? Is he being followed by a neurologist?

I'm not familiar with OE - does this refer to eye problems?

If you haven't done so already, I would ask his pediatrician for a referral to get him a thorough neuropsych assessment which may help you a lot. If possible you want a neuropsych who is familiar with the long term cognitive effects of VLBW.

Your very brief description sounds like executive function problems. Have you read up on this area? It's a relatively new area of LD that has largely been written about in terms of ADHD, Autism spectrum disorders and psychiatric disorders like early onset bipolar.



Patricia - HS mom to 13 yo twins
J - 2E, Crohn's, HoH, Dyspraxia, Bipolar/ASD?
E - 2E, Aud Process+