Pemberley:

I've been following your saga and I have to say I am shocked by the behavior of the school nurses. As SiaSL recommended, document this process. Can I recommend you draft a letter to the principal and cc the classroom teacher & the superintendent? It frightens me that these so called nurses are second guessing the parents and two specialists.

I'm still confused as to why they won't give ibuprofen if her stomach is upset. Vomiting often goes along with migraines.

Pemberley, hang in there. This is local turbulence. What's been said: document everything, and go above their heads with written directives from the doctors.

The principal should understand the need for following doctors' orders. The district won't want a lawsuit... I think they'll comply.

DeeDee

Thanks everyone. DH just came home with the box of Tylenol in hand. While at the school he confirmed that they had already received the doctor's fax. DD came in a second time today complaining of pain next to her eye and down the side of her nose. They "gave her ice and sent her back to class." When DH was there he pointed to spots on his own face and asked if that's where she was saying it hurt. What do you know - it was those exact spots. He said "Well, when I get migraines that's exactly where I feel it."

Apparently no reaction from the nurses. He didn't bother to mention the idea of abdomonal migraines. Clearly they don't get any of it.

I am so glad that I have all of you to vent to about this. I really, truly was beginning to question my own sanity between the hat and this nonsense. Oh yeah, I have a child with a super complicated educational situation too. I almost forgot about that...

Pemberley - Are these nurses Rn's?

Interesting day - although not as dramatic as last week. We hired an education consultant who will be helping us from here on out. He is low key, a former superintendant and special ed coordinator. I think he plans to approach the school district in a way that will allow us to be seen as allies rather than combatants. Instead of agreeing to the IEP being amended to include the hat he wants us to meet again so that we can ensure that all the medical questions are documented - take this all out of the nurses' hands. He also is planning to ask the district to pay for the new neuropsych eval and to have them remove the invalid one from her file. He agreed that DD absolutely needs to have a GOOD neuropsych eval done. Too many unusual numbers and unanswered questions.

As we were leaving our meeting with him I got a phone call from the nurse - DD was there with a headache again. She gave her ibuprofen! Shock of shocks - about 45 minutes after getting the medicine DD asked to go back to class and came home from school feeling 100%. Ain't it amazing? Why didn't I think of telling them sooner that ibuprofen is so effective on her headaches. Oh wait... I did tell them... and tell them... and tell them...

I had to laugh though when DD told me "She will only give me my medicine if my stomach doesn't hurt so I just didn't tell her about my stomach." Smart kid but how sad that she doesn't feel she can tell the school nurse how she's really feeling?

So things are improving. At least I feel a bit more sane than I did last week. Thanks for all the support - will keep you posted.

A couple of interesting developments. First, I think the Elavil has started working! This is day 3 without a headache! YaaaaHoooo!!!! She is seeming a bit dull-witted first thing in the morning but is ok later in the day. We are working on giving her the pill a bit earlier in the evening so hopefully this will pass.

Second, she has been saying her teeth are sore and asking over and over when she is scheduled to go back to the dentist (only about 3 weeks away.) So we went in today and the dentist thinks her teeth may be at the root of all the headache issues! She got us in to see an orthodontist next week who may fit her with a nightguard. A cross bite combined with possible teeth grinding while trying to work on her writing and Voila! Headache! We'll see what comes of it anyway.